On 23 May 2014, a cross-section of individuals from the biomedical/health & social care, arts, community/voluntary sector (brain injury support) organizations attended came to The MAC (Belfast) and participated in a one-hour focus group session in which they heard two sections of a draft of Reassembled…Slightly Askew.
From General Public–
This was a powerful and enlightening piece of work. I felt frightened and nauseous in equal measure. It enabled me to empathise with Shannon and her trauma in a comparatively very short amount of time.
The audio engineering was great. You felt abstracted within the environment. The sound moved you through different realms. The voice brought you back to a place of consciousness.
It made me consciously aware of how good health care in NI is.
It was a spiritual, otherworldly experience.
Having worked in Brain Injury Services, I have some knowledge on how an ABI can impact on an individual, however, to experience it in this way was very insightful and has helped in my learning and understanding.
The technology could also be used to communicate how other hard to understand ailments feel to the sufferer—eg. Dementia/Alzheimers, Autism—so could have a very powerful social impact.
Trying to process what’s going on made me think about how my brain works.
I’d love to see it as a permanent installation in a hospital, a requirement in training.
The hospital system doesn’t allow us to understand what that person’s going through. [They are] a disease entity we’re treating. We forget the humanity underneath.
I thought this was going to be something ‘arty-farty’. I had no idea it would affect me so profoundly and viscerally.
It allows you to have the patient experience without being paralyzed with fear…valuable as we are shifting to a patient-centred servic.
A unique experience that every neurosurgeon would have to experience.
The neurosurgeons also shared that the focus group setting provided the first time they were able to chat with fellow neurosurgeons about their experiences in this way. The experience allowed them to discuss their practice, coping mechanisms and the process of going through parts of the patient journey via Reassembled, Slightly Askew prompted them to unexpected self-analysis, self-reflection and a place of consciousness of their professional competencies.